Applying for Disability Living Allowance can be a nightmare. Do give us a call – 01278 691100 – if it seems overwhelming and you would like some extra help. One of our Family Support Team can maybe come and visit you at home (we will need lots of tea and cake…) or you can come and see us at our base in Westonzoyland, or we can also help by telephone and email if you are a bit of a distance away.
However you may find that with the help of the documents provided here you can do it yourself – the ‘DLA Guidance notes’ are particularly helpful as are the ‘example’ DLA forms. Again – if you have any questions do give us a call.
NB – DLA is split into two components ‘Care’ and Mobility’. Generally speaking the majority of our children DO NOT qualify for the high rate of the mobility component because of any physical difficulties but usually DO qualify on the grounds of “severe mental impairment and challenging behaviour” So it is important NOT to state how far the child can walk but to ignore this question and answer ‘not applicable’ or simply answer ‘no’ to the question “do you have any physical problems that restrict your walking”. Again give us a call if you have any questions.
DLA Guidance Notes
STATEMENTS OF SEN
Until the new ‘Health Care and Education Plans’ come into force, children with Down Syndrome should still access a full ‘Statement of SEN’ from their local authority. If your local pre-school setting/school/educational psychologist etc are telling you that either your child doesn’t need a statement or that your child would never get a statement DON’T BELIEVE THEM!! Give us a call! 01278 691100
Below are documents which should assist you with this process:
A letter to send formally requesting for your child to have a ‘statutory assessment’ with a view to accessing a statement of SEN –
Request for Statementing Letter
How to answer the first round of questions you will be asked –
Statement Form - Early Questions
How to answer the second round of questions you will be asked –
Statement Form - Later Fuller Questions
An example statement – to give you an idea of the kind of provision you should hope to see in your child’s statement –
NB – It is particularly important to ensure that for a child attending mainstream school there is ‘fulltime 1:1 adult support’ detailed in the statement and also that speech and language therapy is ‘specified and quantified’. Again give us a call if you have any questions or if you would like us to look through any of these documents for you or with you.